Mothers Gut Instinct Leads To Childs Rare Diagnosis

Mother’s gut instinct leads to child’s rare diagnosis

KCCI

SMA, life limiting/A mother shares her gut instinct regarding her son's life limiting diagnosis.

Courageous Parents Network

Parents race to save toddler’s life after rare genetic disease diagnosis | Nightline

Parents' experience caring for baby with rare, deadly, genetic disease

Montreal Gazette

Advice to Parents of Children Diagnosed with Terminal Rare Diseases

Mom leads fight for son with rare disease

A Mom's Journey to Understand Her Daughter's Rare Disease

The Balancing Act

"Go with your gut:" Parents of boy with rare disorder hope to help other parents

Teen's rare disorder puzzled doctors but her mom's persistence led to a diagnosis

Being the mother of a child with a rare disease

A Mother's Search for Answers: The Rare Diagnosis Journey!

Kathryne Imabayashi

For Rare Genetic Disorder, Emma’s Mom Trusts Joe DiMaggio Children’s Hospital

Joe DiMaggio Children's Hospital

Rare Disease Parent Educational Series | The Diagnostic Odyssey

American Gene Technologies®

Moms with rare diagnosis meet for the first time

AdvocateHealthCare

How important is a diagnosis for families of children with a rare disease?

US: The 'supercells' that cured an infant's grave genetic illness | AFP

AFP News Agency

Baby has Rare and DEADLY Disease | Mysterious Diagnosis | Shocking Diagnoses | Fresh Lifestyle

Family’s Struggle with Daughter’s Rare Disease

6-year-old suffering from rare neurodegenerative disease

New mom treated by UT Southwestern overcomes rare genetic disease

UT Southwestern Medical Center